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New year New Dialysis Trouble

Well let me tell you about my hernia problem first, I've been on peritoneal dialysis since April 2015, everything was going so well until I managed to get myself a hernia. I was getting stomach pains...

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Townes Brock Syndrome, My Rare Condition That Gave Me Kidney Failure

The doctors had me and my mum see the people who deal with Genetics to see if there was a link with all this kidney failure and deafness. We had some Blood tests done and they were sent to Germany, the...

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My Mum Spent 43 Years Without Knowing She Had Kidney Failure

Imagine walking round with kidney failure without knowing for 43 years with no symptoms what so ever and only finding out when you want to donate to your child. It must of been heart breaking for my...

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Getting Tested to be a Living Kidney Donor for my Partner

After reading up more about living donation the benefits it would have for him, I told him I wanted to be a living donor for him I didn't want him waiting on a list for a call, and at the time he...

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Since I've Been Moved Over To Hemodialysis From Peritoneal Dialysis (update)

What they are going to do is cut my upper arm and cut the vein and attach it to my artery then hopefully when the blood from the artery starts to flow through the vein it will make the vein go wider...

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Official My Kidney Failure Journey App

It's official I have now made an app based on my website blog, it is to make it easier to interact with each other through the live chat function. I have been thinking of doing an app for a long time...

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Kidney Failure Signs and Symptoms and How to Maintain Healthy Kidneys

There are around 64,000 people being treated for kidney failure in the United Kingdom and many more who don't know they have it. Without dialysis or a kidney transplant they sadly die. In the United...

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Opt Out Organ Donation

The National Transplant waiting list is a list for people who need a transplant who maybe don't have a living donor or for people who need a heart transplant for example is their only option as i'm...

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My Fistula Operation for Hemodialysis and PD Tube Removal

I had the heart monitor stickers on my body and wires attached to it and blood pressure cuff, then they put the oxygen mask on me and told me they were putting me to sleep now. When I go for operations...

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Home Hemodialysis Training On Nxstage Machine

I was shocked when she said that because seven days isn't much training but she obviously felt that we were good enough and she also said on Sunday which is today as I write this that we can do it all...

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Care Partner's View on Helping With Home Hemodialysis

One worry I have is that I am planning to go away on holiday abroad with a family member , Michael still doesn't feel confident enough to do dialysis in another country I worry because there isn't...

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My Kidney Transplant At Sixteen

Do you ever get that feeling that you never going to get the call for a kidney transplant, well that's how I felt at sixteen. I thought I would be waiting for ever so when I received the call on the...

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Injections and Drips On Home Hemodialysis Nxstage Machine

This is just a short blog post describing how I give myself my arenesp injection for hemoglobin. Hemodialysis has it's pro's an con's and one of the pro's is injections, many dialysis patients have...

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My Prednisolone Story

Other side effects I had gotten by taking prednisolone is a moon face, my face was a round shape and my cheeks looked like they wanted to explode. I basically looked like a chipmunk. My hair started to...

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My Ever Changing Appetite Due To Kidney Failure

I was also sick every couple of months or so, I would get the same symptoms I would get a headache then start throwing up it would only last for 24 to 48 hours and then I would feel better but during...

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My Fistula Operation for Hemodialysis (Part Two)

When I woke up I wasn't in any pain but I couldn't move my arm because they put an arm blocker into my arm which made it go dead, I also had drain line in my arm to stop it from clotting, It was really...

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My First Time Using My Fistula For Hemodialysis (Video)

The nurse then found where she was going to put the needle so I held my breath and she stuck the needle in, It didn't hurt but I felt a pinch type feeling. It looked worse than it was because when the...

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